DETAILS

Join us in Seattle for the ECD Patient & Family Gathering 2024 at the Renaissance Seattle Hotel. Saturday, April 13 .. 3 pm - 5 pm - Meet and Greet for Patients and Families Sunday, April 14 .. 8 am - 5 pm - ECD Patient & Family Gathering .. 6 pm - 8 pm - ECD Community Celebration-Patients, Family Members, Medical Professionals This meeting will bring together patients, family members, carers, clinicians, researchers, and members of support organizations to share knowledge and experiences related to ECD diagnosis, treatment, and daily living. There will be time for learning, time for sharing, and time for connecting with others who have been affected by ECD. We hope it will be a time for all to become better informed and find increased hope for the future.